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Re: [Gnumed-devel] Family History tables
From: |
Karsten Hilbert |
Subject: |
Re: [Gnumed-devel] Family History tables |
Date: |
Tue, 14 Jun 2011 11:52:14 +0200 |
User-agent: |
Mutt/1.5.21 (2010-09-15) |
On Tue, Jun 14, 2011 at 06:39:33PM +1000, Elizabeth Dodd wrote:
> > When my sister (who hates my guts - not really) tells her doctor the
> > same information about Maria, does her doctor discover (which maybe
> > my sister and I did not know) that we are both in the same praxis? I
> > would find it very strange after I told my doctor my mother's name
> > and the doctor says "isn't that interesting? I imagine you must have
> > a sibling named Jane Moneypenny?"
>
> After 15 years in the same practice, with the same patients, I am
> finding out that some are sisters, just as you describe.
Isn't it a wonderful world ?
> Just how to handle the family specific health information is an ethical
> nightmare.
That is why it is important to elicit input from many people
(you, Adrian, Richard, Jim) such as to correct my naive,
information-oriented, first attempt at a table structure :-)
Two important concepts have been unearthed so far:
- family history needs to be push, not pull
-> consent of relative
- family history needs to be copy-per-patient, not shared
-> degrees of insanity among related people
-> lawsuit prevention for GNUmed developers :-)
Karsten
--
GPG key ID E4071346 @ gpg-keyserver.de
E167 67FD A291 2BEA 73BD 4537 78B9 A9F9 E407 1346
Re: [Gnumed-devel] Family History tables, Jim Busser, 2011/06/09
Re: [Gnumed-devel] Family History tables, Elizabeth Dodd, 2011/06/14
Re: [Gnumed-devel] Family History tables, Karsten Hilbert, 2011/06/16
Re: [Gnumed-devel] Family History tables, Jim Busser, 2011/06/15
Re: [Gnumed-devel] Family History tables, Karsten Hilbert, 2011/06/16
Re: [Gnumed-devel] Family History tables, Karsten Hilbert, 2011/06/16
Re: [Gnumed-devel] Family History tables, Rogerio Luz Coelho, 2011/06/16
Re: [Gnumed-devel] Family History tables, Jim Busser, 2011/06/17
Re: [Gnumed-devel] Family History tables, Karsten Hilbert, 2011/06/17